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Javier
is 18 years old and has spastic cerebral
palsy that greatly limits his movement
and speech. When a small group from
the course visited his home, at first
his family was quite scepitcal. His
mother explained that time and again
charitable programs had come, given
advice without listening, taken photos
and made promises for assistance,
but without results. The family was
fed up.
In a corner of the house, gathering
dust, was a donated wheelchair. For
Javier it was useless. It was so wide
he fell sideways in it. The arm-rests
were way too high. The foot-rests
projected far forward, out of reach
of his contracted legs. His pulled-back
feet bumped into the front caster
wheels.
At the workshop the group modified
Javier’s wheelchair to meet his needs.
To make it narrower they reduced the
width of the vinyl seat and back.
This closed the X-brace somewhat (which
also raised the seat, in effect lowering
the arm-rests.) They cut and rewelded
the foot-rests between rather than
in front of the castors. And they
added a seat belt to keep his butt
from slipping forward.
Javier and his family were so delighted,
they joined the course the next day,
to help others learn from such interactive
problem-solving.
Overall, the workshop was a great
success. Altogether the course
participants designed and made 14
devices for 7 children.
Most importantly, they learned how
to work together with disabled persons
and their families as partners and
as equals.
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