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Nothing About Us Without Us, book cover

Nothing About Us Without Us

Developing Innovative Technologies
For, By and With Disabled Persons

The new book  by David Werner author of 
Where There Is No Doctor 

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Nothing About Us Without Us

Disabled persons as leaders in the problem-solving process

This book differs from most manuals on disability aids and equipment in 3 basic ways: 
    1. We make an effort to put the person and the process before the product. The book covers a wide selection of innovative equipment that is relatively easy to make at the village and community level. But in presenting each innovation, it places emphasis not so much on the end-product (however important) as on the collaborative process of discovery. In this approach, the disabled person seeking assistance (and/or his or her family members) works in partnership with the service providers or technicians. We hope to show that when such a partnership exists, often the results are more enabling than when assistive equipment is unilaterally prescribed or designed. 

    2. Our goal is not replicability but rather adaptability and shared creativity. It is true that most of the aids and devices illustrated on these pages can be easily replicated at low cost at home or in a basic community workshop. Unfortunately, however, the prevailing strong emphasis on replicability of appropriate technologies can be counterproductive. This is especially so in the field of rehabilitation, where the needs, possibilities and dreams of each disabled person are different. Too often, the faithful replication of standardized designs contributes to a routine of trying to adapt the disabled person to the assistive device, rather than to adapt the device to the disabled person. Therefore … 
     

      Our objective is not to catalogue a set of aids and equipment to be copied, but to share an Empowering Problem-Solving Approach.
    In most of the examples given in this book, we start by looking at an individual disabled person. Placing that individual as central to the problem-solving process, we explore his or her unique combination of wishes and needs. We then describe the cooperative, trial-and-error methods used in designing solutions to meet those needs. The problem-solving process is ongoing and open ended. Sometimes it entails learning new skills, sometimes it involves modification of environment, and sometimes the invention, adaptation, or elimination of an assistive device. 

    3. Many of the rehabilitation workers and technicians responsible for the innovations in this book are themselves disabled. Because they too have a disability, they are more inclined to work with a disabled ‘client' as a partner and equal in the problem-solving process. Also, being disabled, they may have perspectives and insights leading to new designs that help enable the disabled individual with whom they work. 

    Most of the innovations illustrated on these pages were developed in PROJIMO (Program of Rehabilitation Organized by Disabled Youth of Western Mexico). PROJIMO is a community rehabilitation program based in a small village (1000 inhabitants) in the mountains of Western Mexico. The author of this book—himself disabled—has worked as a facilitator and advisor to the program since its inception at the beginning of the 1980s. In this introduction we give a brief account of PROJIMO and how it differs from similar programs. For more information on the program we suggest you look at Disabled Village Children, a handbook which grew out of PROJIMO. 

    Order a copy for your organization now! 

     

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